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She was diagnosed with adoa in 1986 That's why we decided to start the adoa association. She created the cure adoa foundation in an effort to find out more about the disease and potential cures, as well as spread awareness and her own personal story across the netherlands.
De cure adoa foundation is een stichting opgericht in november 2018, door en voor mensen met adoa Currently, there is no treatment, cure, preventative measures, or proper funding for the research for a cure for adoa The foundation has been operating since at least 2018, as indicated by the copyright information on its website
The organization has a strong online presence, utilizing various social media platforms and a dedicated website (adoa.eu) to disseminate information and connect with the adoa community.
Cure adoa foundation is a patient led organisation who work together with ophthalmologists around the world to find a cure for adoa Adoa stands for autosomal dominant optic atrophy which leads to a debilitating loss of vision. Cure adoa foundation is in november 2018 opgericht door en voor patiënten Onze missie is een platform te zijn om wetenschappelijk onderzoek naar behandeling en genezing van adoa financieel mogelijk te maken.
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